Chemo day, so there most likely won’t be a ton of stuff up. Wednesday is pain clinic, but at least it’s not until early afternoon. These “be at the lab by 8am” days, ugh. That means getting up at 5:30am. Bleargh.
I have been used to getting up before 4:00 to beat the traffic — Boston is not a great place to have a long commute. Over the weekend I started “sleeping in”, which so far means I’ve been getting up around 6:00.
I’m expecting that to continue to slide until I have a more normal sleep schedule. I’m not a morning person by nature, I was just forced to it by circumstances. I imagine it won’t be long until I share your disgust at a 5:30 alarm.
If you are anything like me, then early waking must be the final “plt” atop the pile of shit.* Are you allowed to fall asleep during the chemo session? Probably not. Have you read the last witcher book? I think it was allready published in english.
*I never, ever got used to early waking up. When in highschool I had to wake up at 5:00 a.m. to catch the bus, and I inevitably fell asleep for an hour right after getting home from school. I could not avoid it. Which of course meant I could not sleep in the night etc.
If you are anything like me, then early waking must be the final “plt” atop the pile of shit.* Are you allowed to fall asleep during the chemo session? Probably not. Have you read the last witcher book? I think it was allready published in english.
Oh yes, it’s a cherry on the shit sundae. Yes, you can sleep, you just get woken up several times during the course. I’m waiting for the new Witcher book! Not out until March here. Looking forward to it.
nowamfoundsays
when you see that tag “must be handled by gloves” how do your veins react to that????? we have to find a better way than slash and burn and poison
when you see that tag “must be handled by gloves” how do your veins react to that?
If chemo is used on arm veins, it destroys them, which is why you have a port installed. It doesn’t have the same effect that way. You can see a photo of my install here, and of it in use here.
And yes, it’s not fun allowing people to poison you and bombard you with radiation, but y’know, the option is death. Chemo is also very targeted to specific cancers, that’s why there are so many different protocols.
jazzletsays
I’d know it was stupid, but I’d probably end up just staying up and not going to bed at all if I didn’t have to drive. Hope you manage to get in some decent napping at least.
Yeah, that doesn’t work as well as when I was younger, and I’ve had at least two nights a week I have gone without sleep because pain. I didn’t sleep at all Saturday through Sunday night.
Raucous Indignationsays
Oh Caine, no! I’m so sorry. I hope pain clinic fixes that. You can’t heal if you don’t sleep.
I’ll be okay, it’s just that right now I’m off my regular pain meds, so it’s the morphine alone, and it’s not quite as effective as I would have liked. I did have confirmation from my friend in colon cancer treatment that yep, it’s the acetaminophen that’s primarily responsible for the liver spikes, so I’ll have to work this out with my Onco tomorrow, because I need to be back on my regular meds, but, I’m going to try and stay off them completely for the next two weeks after chemo, to be sure it isn’t the chemo causing the spike, so that’s the rock and the hard place coming up.
jimbsays
DonDueed @ 1:
Congrats! I fight a similar commute issue here in Silicon Valley, but not being a morning person I typically shift my day late.
Caine:
Hope the next two days aren’t too exhausting and you’re able to get some sleep sometime.
Raucous Indignationsays
The morphine isn’t as effective because they gave you a piddling dose. I can’t believe you were prescribed 10 mg/5 ml. You’ll do much better when they advance you to the 100 mg/5 ml concentrate. Good luck tomorrow.
Yeah, I knew that when I saw the label. We’ll see if I get the 100mg/5ml, if I do, it won’t be until radiation, which is likely why there’s reluctance to give me any now. Addiction, y’know. Fuck me, it really sucks to be in nDakota sometimes, and this is one of them. I’ll “soldier” on. What else can you do?
DonDueed says
I just retired (as of today!)
I have been used to getting up before 4:00 to beat the traffic — Boston is not a great place to have a long commute. Over the weekend I started “sleeping in”, which so far means I’ve been getting up around 6:00.
I’m expecting that to continue to slide until I have a more normal sleep schedule. I’m not a morning person by nature, I was just forced to it by circumstances. I imagine it won’t be long until I share your disgust at a 5:30 alarm.
Caine says
Happy Retirement! Yeah, I’m nocturnal by nature, I don’t like this morning stuff.
Charly says
If you are anything like me, then early waking must be the final “plt” atop the pile of shit.* Are you allowed to fall asleep during the chemo session? Probably not. Have you read the last witcher book? I think it was allready published in english.
*I never, ever got used to early waking up. When in highschool I had to wake up at 5:00 a.m. to catch the bus, and I inevitably fell asleep for an hour right after getting home from school. I could not avoid it. Which of course meant I could not sleep in the night etc.
Caine says
Charly:
Oh yes, it’s a cherry on the shit sundae. Yes, you can sleep, you just get woken up several times during the course. I’m waiting for the new Witcher book! Not out until March here. Looking forward to it.
nowamfound says
when you see that tag “must be handled by gloves” how do your veins react to that????? we have to find a better way than slash and burn and poison
Caine says
Nowamfound:
If chemo is used on arm veins, it destroys them, which is why you have a port installed. It doesn’t have the same effect that way. You can see a photo of my install here, and of it in use here.
And yes, it’s not fun allowing people to poison you and bombard you with radiation, but y’know, the option is death. Chemo is also very targeted to specific cancers, that’s why there are so many different protocols.
jazzlet says
I’d know it was stupid, but I’d probably end up just staying up and not going to bed at all if I didn’t have to drive. Hope you manage to get in some decent napping at least.
Caine says
Yeah, that doesn’t work as well as when I was younger, and I’ve had at least two nights a week I have gone without sleep because pain. I didn’t sleep at all Saturday through Sunday night.
Raucous Indignation says
Oh Caine, no! I’m so sorry. I hope pain clinic fixes that. You can’t heal if you don’t sleep.
Caine says
I’ll be okay, it’s just that right now I’m off my regular pain meds, so it’s the morphine alone, and it’s not quite as effective as I would have liked. I did have confirmation from my friend in colon cancer treatment that yep, it’s the acetaminophen that’s primarily responsible for the liver spikes, so I’ll have to work this out with my Onco tomorrow, because I need to be back on my regular meds, but, I’m going to try and stay off them completely for the next two weeks after chemo, to be sure it isn’t the chemo causing the spike, so that’s the rock and the hard place coming up.
jimb says
DonDueed @ 1:
Congrats! I fight a similar commute issue here in Silicon Valley, but not being a morning person I typically shift my day late.
Caine:
Hope the next two days aren’t too exhausting and you’re able to get some sleep sometime.
Raucous Indignation says
The morphine isn’t as effective because they gave you a piddling dose. I can’t believe you were prescribed 10 mg/5 ml. You’ll do much better when they advance you to the 100 mg/5 ml concentrate. Good luck tomorrow.
Caine says
Yeah, I knew that when I saw the label. We’ll see if I get the 100mg/5ml, if I do, it won’t be until radiation, which is likely why there’s reluctance to give me any now. Addiction, y’know. Fuck me, it really sucks to be in nDakota sometimes, and this is one of them. I’ll “soldier” on. What else can you do?
Thank you. :)